2018年糖尿病技术极有前途的状态-CSDN博客

This blog post is an update to these two Diabetes Technology blog posts:

这篇博客文章是对这两个糖尿病技术博客文章的更新：

You might also enjoy this video of the talk I gave at WebStock 2018 on Solving Diabetes with an Open Source Artificial Pancreas*.

您可能还喜欢我在WebStock 2018上发表的关于使用开源人工胰腺解决糖尿病的演讲视频*。

First, let me tell you that insulin is too expensive in the US.

首先，让我告诉您，在美国，胰岛素过于昂贵。

Between 2002 and 2013, the price of insulin jumped, with the typical cost for patients increasing from about $40 a vial to $130.

在2002年至2013年期间，胰岛素的价格猛增，患者的典型费用从每瓶约40美元增加到130美元。

Open Source Artificial Pancreas on iPhone

For some of the newer insulins like the ones I use, I pay as much as $296 a bottle. I have a Health Savings Plan so this is often out of pocket until I hit the limit for the year.

对于一些较新的胰岛素，例如我使用的胰岛素，我每瓶要支付296美元。我有一个“健康储蓄计划”，因此在我达到全年限额之前，这通常是不花钱的。

People in America are rationing insulin. This is demonstrable fact. I've personally mailed extra insulin to folks in need. I've meet young people who lost their insurance at age 26 and have had to skip shots to save vials of insulin.

在美国，人们正在配给胰岛素。这是可证明的事实。我个人已将多余的胰岛素邮寄给有需要的人。我遇到了一些年轻人，他们在26岁时失去了保险，不得不跳过镜头以保存一小瓶胰岛素。

This is a problem, but on the technology side there's some extremely promising work happening, and it's we have really hit our stride in the last ten years.

这是一个问题，但是在技术方面，正在发生一些非常有前途的工作，这是我们在过去十年中取得了长足的进步。

I wrote the first Glucose Management system for the PalmPilot in 1998 called GlucoPilot and provided on the go in-depth analysis for the first time. The first thing that struck me was that the PalmPilot and the Blood Sugar Meter were the same size. Why did I need two devices with batteries, screens, buttons and a CPU? Why so many devices?

我在1998年为PalmPilot编写了第一个葡萄糖管理系统，称为GlucoPilot，并首次提供了进行中的深入分析。让我震惊的第一件事是PalmPilot和血糖仪的尺寸相同。为什么我需要两个带有电池，屏幕，按钮和CPU的设备？为什么有那么多设备？

I've been told every year the a Diabetes Breakthrough is coming "in five years." It's been 25 years.

每年我都被告知糖尿病突破将在“五年内”到来。 已经25年了。

In 2001 I went on a trip across the country with my wife, an insulin pump and 8 PDAs (personal digital assistants, the "iPhones" of the time) and tried to manage my diabetes using all the latest wireless technology...this was the latest stuff 17 years ago. I had just moved from injections to an insulin pump. Even now in 2018 Insulin Pumps are expensive, mostly proprietary, and super expensive. In fact, many folks use insulin pumps in the states use out of warranty pumps purchased on Craigslist.

2001年，我与妻子，胰岛素泵和8台PDA (当时的个人数字助理，当时的“ iPhone”)一起去了全国，并尝试使用所有最新的无线技术来管理我的糖尿病。 17年前的最新资料。我刚刚从注射转向胰岛素泵。即使到了2018年，胰岛素泵也很昂贵，大部分都是专有产品，而且非常昂贵。实际上，许多人在州使用在Craigslist上购买的不在保修范围内的胰岛素泵。

Fast forward to 2018 and I've been using an Open Source Artificial Pancreas for two years.

快进到2018年，我已经使用开源人工胰腺两年了。

OpenAPS - Open Artificial Pancreas System. A platform for building a closed-loop with open tools.
OpenAPS-开放式人工胰腺系统。 一个使用开放工具构建闭环的平台。
- AndroidAPS - A branch of OpenAPS running on Android
  AndroidAPS-在Android上运行的OpenAPS的一个分支
OpenAPS - Open Artificial Pancreas System. A platform for building a closed-loop with open tools.
OpenAPS-开放式人工胰腺系统。 一个使用开放工具构建闭环的平台。
Loop/LoopKit - Open Source Artificial Pancreas running on the iPhone with a hardware bridge (RileyLink) to the pump.
Loop / LoopKit-在iPhone上运行的开源人工胰腺，具有到泵的硬件桥(RileyLink)。
- I run this pancreas, personally, and have for nearly 2 years.
  我个人经营这种胰腺，已经有两年了。
Loop/LoopKit - Open Source Artificial Pancreas running on the iPhone with a hardware bridge (RileyLink) to the pump.
Loop / LoopKit-在iPhone上运行的开源人工胰腺，具有到泵的硬件桥(RileyLink)。
Watch Dana Lewis (the originator of OpenAPS) talk about OpenAPS at OSCON!
观看Dana Lewis(OpenAPS的创始人)在OSCON上谈论OpenAPS ！

The results speak for themselves. While I do have bad sugars sometimes, and I do struggle, if you look at my blood work my HA1c (the long term measurement of "how I'm doing" shows non-diabetic levels. To be clear - I'm fully and completely Type 1 diabetic, I produce zero insulin of my own. I take between 40 and 50 Units of insulin every day, and have for the last 25 years...but I will likely die of old age.

结果不言自明。虽然有时候我确实有坏糖，但我确实很挣扎，但是如果您查看我的血液功用，我的HA1c(“我做得如何”的长期测量显示出非糖尿病水平。要明确-我完全完全是1型糖尿病患者，我自己产生的胰岛素为零，我每天需要服用40至50单位的胰岛素，并且在过去25年中一直服用...但是我很可能会死于老年。

Open Source Artificial Pancreas === Diabetes results pic.twitter.com/ZSsApTLRXq
— Scott Hanselman (@shanselman)
开源人工胰腺===糖尿病结果pic.twitter.com/ZSsApTLRXq
-Scott Hanselman(@shanselman) September 10, 2018 2018年9月10日

This is significant. Why? Because historically diabetics die of diabetes. While we wait (or more accurately, #WeAreNotWaiting) for a biological/medical solution to Type 1 diabetes, the DIY (Do It Yourself) community is just doing it ourselves.

这很重要。为什么？因为历史上糖尿病患者死于糖尿病。当我们等待(或更准确地说， #WeAreNotWaiting )寻求针对1型糖尿病的生物/医学解决方案时，DIY(自己动手)社区只是在自己动手做。

Building on open hardware, open software, and reverse-engineered protocols for proprietary hardware, the online diabetes community literally has their choice of open source pancreases in 2018! Who would have imagined it. You can choose your algorithms, your phone, your pump, your continuous glucose meter.

建立在开放硬件，开放软件和专有硬件的逆向工程协议的基础上，在线糖尿病社区将在2018年选择开放源代码胰腺！ 谁能想到的。您可以选择算法，手机，泵，连续血糖仪。

Today, in 2018, you can literally change the code and recompile a personal branch of your own pancreas.

今天，在2018年，您可以从字面上更改代码并重新编译您自己的胰腺的个人分支。

Watch my 2010 YouTube video "I am Diabetic" as I walk you through the medical hardware (pumps, needles, tubes, wires) in managing diabetes day to day. Then watch my 2018 talk on Solving Diabetes with an Open Source Artificial Pancreas*.

观看我在管理糖尿病的日常医疗硬件(泵，针头，管子，电线)中带给我的2010年YouTube视频“我是糖尿病”。然后观看我的2018年关于使用开源人工胰腺解决糖尿病的演讲*。

I believe that every diabetic should be offered a pump, a continuous glucose meter, and trained on some kind of artificial pancreas. A cloud based reporting system has also been a joy. My wife and family can see my sugar in real time when I'm away. My wife has even called me overseas to wake me up when I was in a bad sugar situation.

我相信应该为每位糖尿病患者提供泵，连续血糖仪，并接受某种人造胰腺的培训。基于云的报告系统也很令人高兴。我外出时，我的妻子和家人可以实时看到我的糖分。我的糖状况不好时，我的妻子甚至打电话给我，叫醒我。

As the closed-hardware and closed-software medical companies work towards their own artificial pancreases, the open source community feel those companies would better serve us by opening up their protocols, using standard Bluetooth ISO profiles and use security best practices.

随着封闭式硬件和封闭式软件医疗公司朝着自己的人造胰腺努力，开放源代码社区认为那些公司可以通过使用标准的蓝牙ISO配置文件和使用安全性最佳做法开放协议来更好地为我们服务。

Looking at the table above, the open source community is squarely in #4 and moving quickly into #5. But why did we have to do this ourselves? We got tired of waiting.

从上表可以看出，开放源代码社区排在第四位，并Swift进入第五位。但是为什么我们必须自己做呢？我们厌倦了等待。

All in all, through open software and hardware, I can tell you that my life is SO MUCH BETTER than it was when I was first diagnosed. I figure we'll have this all figured out in about five years, right? ;)

总而言之，通过开放的软件和硬件，我可以告诉您，我的生活比最初被诊断时要好得多。我认为我们将在大约五年内解决所有问题，对吗？ ;)

THANK YOU!

谢谢！